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Wednesday, May 25, 2011

Jason's Graduation Weekend


Jason graduated from Baylor on May 13. We had brunch that Friday before the ceremony at Cafe Cappuccino...one of my favorites in Waco and then dinner at Georges...another of my favorites in Waco. It's so wonderful to go back to your college town and eat some of the yummy local food! mmmmmmm! Mimi and Daddy Cleat were at brunch and the ceremony, and it was so wonderful to see them!



We celebrated Jason's graduation the rest of the weekend at the Hyatt Hill Country resort outside of San Antonio. We had such a wonderful time! The 3 boys golfed Saturday and Sunday while Karol and I shopped and sunbathed and floated down the lazy river at the resort. Saturday night we went to a wonderful brazilian steakhouse-it was absolutely delicious!






Jordan did very well. This was the first time he had been out of the apartment, doing normal things and he felt great! He took it pretty easy playing golf so he wouldn't overdo it (although not as easy as his wife would've liked :)). He was pretty tired but no big headaches or tingling or anything like that so I think he's on the mend for good hopefully!


Saturday, May 21, 2011

Follow-up appointment for Jordan

Last Tuesday Jordan had his follow-up appointment with his neurosurgeon. Dr. Welch showed us Jordan's CT scan, MRI scan, and angiogram images which was pretty cool. Apparently, Jordan has larger than normal cavities (these are kind of hollow areas in the brain that has no brain matter, just spinal fluid) in his brain, which the doctor thinks made his headaches worse than most peoples with this condition. So I have been teasing Jordan that he has huge hollow areas in his brain, haha!

Overall Jordan is at an increased-risk for having another brain hemorrhage the next 5-6 months so he must be careful. No straining or really hard workouts, although he is allowed to start working out again and being more active SLOWLY. Wish me good luck on keeping him reigned in! Otherwise, he is good to go. There won't be any long-term effects. He never has to see Dr. Welch again and there will be no more follow-up imaging, unless something goes wrong. So good news!

Sunday, May 8, 2011

A Strange Symptom

Very early Friday morning around 2:45 am, Jordan woke me up saying he was having some odd symptoms. He felt tingling all over his body that began in the base of his head and spread out. He couldn't describe it very well, but did describe it as tingling and burning sensations running throughout his body. It lasted for about 3 hours or so. For about 30 minutes of that time he also had these convulsions/shaking of his entire body. They came in waves and his whole body was shaking. As you can imagine, these symptoms freaked us out quite a bit! I called the doctor on call and spoke with him, and I was just about to take him back to the ER when it started getting a little better so we didn't end up going to the ER. The next day Jordan spoke with the doctor and he said Jordan probably just overdid it the day before and the blood draining out of his head and down his spine probably just irritated a nerve in his spine. He said the shaking was probably just Jordan's body reacting to such an odd sensation. Nevertheless, the doctor told Jordan to slow down and take it easy! If you know Jordan well, this is kind of a foreign concept to him, haha! I definitely have my work cut out for me keeping him cooped up and taking it easy! Anyways, we were just glad it ended up being no big deal and just a warning for him to slow it down a bit!

Wednesday, May 4, 2011

Jordan Update

Jordan is doing fantastic! Toward the end of last week, I was able to wean him off of around-the-clock pain meds. This was especially good for me, haha, because I was waking up at 12:00am, 2:00 am, and 4:00 am to give him medicine. As you can imagine I was getting pretty exhausted! Anyways, I started skipping certain times to give him medicine and every day he has had to take less and less. Today is the first day he hasn't had to take any pain medication! His headaches are way better! If he does a lot of certain things like watching TV or too much movement then they start to creep back, but overall he is doing great. It's so good to see him start returning to his old self! Whew!

Wednesday, April 27, 2011

Easter Sunday

For Easter we were suppose to be in Houston with my in-laws. Well, as you can imagine that didn't happen! We at least were not at the hospital anymore! Jack, Karol, and Jason came down from Norman to be with Jordan and me for Easter this year so at least we were with who we originally planned to be! Even though we didn't get to celebrate Easter traditionally like we do with going to church and having a big Easter Dinner, we were especially thankful this year that we were both here to celebrate together Jesus dying for our sins so that we could have eternal life with Him. It's amazing how a scare like Jordan had puts life into perspective for you. We have done some research on what happened to Jordan, and almost 50% of people that have the kind of brain bleed Jordan had die. Most of those who die have the bleed due to an aneurysm or other vessel malformation, so it shows how very lucky Jordan is to be here! We are so thankful that he is still here enjoying life!

We hope everyone had a wonderful Easter!!

Sunday, April 24, 2011

Our Scare This Week


Well this last Monday we had quite the scary evening and next 24 hours! Monday night Jordan was working out and said he felt something pop in the back of his head. He then experience the "worst headache of his life," as he described it. I took him the to ER because I remembered earlier this semester my professors saying that description of a headache is often associated with a stroke. The next few hours were the scariest ones of both Jordan and mine's life. They took him back for a CT scan. It took about an hour before they did this, and that hour was awful. He was in excruciating pain, sweating insane amounts, shaking really bad, vomiting, and then he stopped talking to me altogether. They describe the type of headache Jordan had as a Thunderclap headache because it reaches maximum intensity in just a few seconds. They also described it to us as a feeling like a brain freeze for about 24-48 hours straight. Every time he vomited his head would turn really bright red because he already had increased pressure in there from the brain bleed. The ER workers really thought he was just dehydrated, but once they saw the CT scan results, they were all over it. They hadn't yet told me anything, but I knew a something was horribly wrong because they rushed him into a room and a zillion people were coming in and out. They were asking me a ton of questions because Jordan wouldn't talk at this point. They brought in seizure pads to cover the bed rails which was scary too!

So the diagnosis was a perimesencephalic non-aneurysmal subarachnoid hemorrhage. Basically, he had a small brain bleed in the brainstem area due to a popped blood vessel. The first night he had a CT scan, a CT angiogram scan, and an MRI. If you've had an MRI before you can imagine the agony it was for Jordan with an excruciating headache and all the clicking noise it makes. It lasted for about 1 1/2 hours. They transferred him to Zale Lipshy ICU that night, where they finally got his headache down just a tiny bit. The first 24-48 hours there was a lot of monitoring to make sure he didn't continue to bleed or go downhill. Thursday, he had an angiogram to determine what caused the bleed. It turned out it was due to a popped blood vessel, which is the best thing. Other possible causes are an aneurysm or other vessel malformation. He was in ICU until Friday, then a regular room until discharge on Saturday. It took a while to find a combination of pain medicines that work pretty well. The headaches won't go away soon, but they are just trying to manage them to where he can do something because right now he can't really do anything. He even has trouble watching a full movie or TV show because it's tough to focus.

It's been rough since we got home from the hospital. We've had a hard time controlling his headaches. It's incredible how much it's affected him. Lights must be off. Sounds low. The TV bothers him after a while. He has been sleeping most of the day. He's so weak, it exhausts him to get up and go to the restroom. The nausea has returned some so we are trying to get that under control too.

Doctor said no work for at least 6 weeks probably. It will take that long for the headaches to begin fading and for him to be able to do a full day's worth of activities. He has a long road ahead of him I think.

This day he was feeling a lot better so he was getting up to use the restroom.



This is the incision from the angiogram. Everyone kept asking me how big it was so I thought I'd take a picture. This is on his upper, inner thigh. This test was the good news test that told us no aneurysm and no brain surgery! They insert a catheter in the femoral artery here and route it up to his brain. He was sedated but still awake. For 6 hours afterwards, he had to keep his leg perfectly still, couldn't raise his head, or strain for anything so it wouldn't start bleeding.


Here's my snuggie that I lived with all week. It was absolutely freezing on the ICU floor and especially in Jordan's room because he was hot. This was my best friend, along with some of Aunt Nett's blankets that she makes.When he was feeling better and didn't mind having his picture taken. I didn't take any pictures of him when he was really bad the first 48 hours or so because he was so miserable and light bothered him. Plus, you wouldn't have wanted to see what he looked like!
Major definitely senses that Jordan doesn't feel good. He has been right by him since we've been home. So sweet.

Monday, April 18, 2011

Woops!

Haha I guess I cooked that pizza slice enough huh?!